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Gilbert's Syndrome | The Detoxification System | Understanding the Mutations | GS Symptoms | Things That Help & Things To Avoid Connections To: Allergies | Chronic Fatigue Syndrome | Candida | Soy | Hypothyroidism Also: Forums | Survey | Contact
Gilbert's Syndrome Symptoms
Contents: Symptom Surveys, Groups, & Causation | Symptoms Listed By Person | Symptoms in Detail | Diet-Related Symptoms | Some Official Sources
This is a work in progress and is being updated regularly. Check back regularly, as I will be steadily improving the site and adding more information.
Symptom Surveys
First, check out the growing results from our own Gilbert's Syndrome Survey. Following is one limited study done on GS symptoms.
The clinical presentation of Gilbert's disease in 26 patients
Twenty-six patients with Gilbert's disease (congenital, non-haemolytic unconjugated hyperbilirubinaemia) were analysed regarding their clinical presentation, age at onset of symptoms, sex, frequency of symptoms, family history, race and religion. Seventy-three per cent were men, the mean age at onset of symptoms was 21 years, and frequency of symptoms ranged from 4 times a year to once every 5 years. The symptoms, which were extremely vague, included the following: recurrent asymptomatic jaundice in 74%, malaise in 66%, asthenia in 65%, and vague abdominal distension in 52% of patients. Eight per cent of patients were totally asymptomatic.
Note: asthenia is weakness
Key Liver Functions
Take a look at the key liver functions. There may be an overall slowing of liver function in Gilbert's Syndrome, though at this time the only evidence is via connections to the symptoms people are experiencing.
http://www.springboard4health.com/monthly/your_body/iyb_8_98.html
Key Liver Functions
The liver is the body’s largest organ, weighing three to five pounds in adults. Optimal nutrition is a function not just of what we eat and digest, but of how well the liver transforms incoming nutrients into the proper biochemical forms your cells need to perform their metabolic functions. Some of the liver’s key functions:• Converts the thyroid hormone thyroxine (T4) into it more active form triiodothyronine (T3). Inadequate conversion may lead to hypothyroidism, chronic fatigue, weight gain, poor memory and other debilitating conditions.
• Creates GTF (Glucose Tolerance Factor) from chromium, niacin and possibly glutathione. GTF is needed for the hormone insulin to properly regulate blood-sugar levels. Manufactures bile salts which emulsify fats and the fat-soluble vitamins A, D, E, and K for proper absorption. The liver also removes some fat-soluble toxins from the body.
• Activates B vitamins into their biologically active coenzyme forms. Virtually every nutrient must be biotransformed by the liver into its proper biochemical form before the nutrient can be stored, transported or used in cellular metabolism.
• Stores various nutrients, especially A, D, B-12 and iron for release as needed.
• Manufactures carnitine from lysine and other nutrients. Carnitine is the only known bionutrient which can escort fats into the mitochondria where they are used to generate ATP energy. The mitochondria generate 90% of the ATP energy at the cellular level.
• Converts lactic acid from a toxic waste to an important storage fuel. Lactic acid is produced when glucose is metabolized through the energy production cycle. When excessive levels accumulate, you experience sore muscles. A healthy liver will extract lactic acid from the bloodstream and convert it into the reserve endurance fuel, glycogen.
• Serves as the main glucose buffer, preventing high or low extremes of blood sugar. The liver is the key regulator of blood sugar between meals due to its manufacture, storage, and release of glycogen, the starch form of glucose. When blood sugar is low, a healthy liver converts stored glycogen into glucose, releasing it into the bloodstream to raise blood sugar levels. When blood sugar is high, a healthy liver will convert the excess into stored glycogen or fat.
• Chief regulator of protein metabolism. The liver converts different amino acids into each other as needed.
• Produces cholesterol and converts it into the various forms needed for blood transport.
• Converts essential fatty acids such as GLA, EPA, and DHA into the lipoprotein forms necessary to allow transport via the bloodstream to the 50 trillion cells requiring fatty acids.
• Main poison-detoxifying organ in the body. The liver must break down every substance toxic to the body including metabolic wastes, insecticide and pesticide residues, drugs, alcohol, etc. Failure of this function will usually cause death in 12 to 24 hours.
• Removes ammonia, a toxic by-product of animal protein metabolism, from the body.
• Breaks down hormones after they have served their function. i.e., if the liver does not break down insulin fast enough, hypoglycemia results because the circulating insulin continues to lower blood sugar.
Note: The explanatory power of a sluggish overall liver is quite strong. This has the ability to explain fatigue, tiredness, hypoglycemia, reactive hypoglycemia, muscle soreness, and possibly the mental effects due to slower detoxification - brain fog, poor memory, difficulty concentrating, difficulty finding the right words. Plus the hypothyroid effects of low T3 levels can cause many of the related problems.
Gilbert's Syndrome Symptoms
Following are the symptoms described by 286 people with Gilbert's Syndrome. You will see common themes running through them all; things which appear so frequently as to indicate a direct relation to GS. There are also some symptoms which show up rarely, which are probably unrelated to GIlbert's Syndrome.
You can also see the results from The Survey. As more people fill out the survey, this will provide even stronger evidence as to what can be attributed to Gilbert's Syndrome (as well as to what degree) and what is common across the population. You can help by filling out the survey.
Note that these were not all exhaustive lists of symptoms. Some people were replying to a topic about a specific symptom. Jaundice is turning yellow. The whites of people's eyes will turn yellow before their skin does. loss of appetite refers only to lack of appetite. loss of appetite nervosa is the psychological problem with eating. IBS stands for Irritable Bowel Syndrome, which is a catch-all diagnosis for people with digestive problems when nothing shows up on tests. CFS stands for Chronic Fatigue Syndrome, and is also known as ME. It's a catch-all diagnoses for people suffering severe fatigue and energy problems when nothing shows up on tests.
Most Commonly Reported Symptoms
From the following, here are the most common symptoms:
Frequently Reported: fatigue, tiredness, brain fog, headaches, poor memory, dizziness, depression, irritability, anxiety, nausea, loss of appetite, irritable bowel syndrome (IBS), stomach pain & cramping, liver/gallbladder pain, abdominal pain, tremors, itchiness, jaundice
Commonly Reported: insomnia, difficulty concentrating, panic attacks, hypoglycemic reaction to foods, intolerance to carbs, food intolerances, alcohol intolerance, loose stools / diarrhea, abdominal bloating or swelling, breathlessness or labored breathing, heart palpitations, aching muscles / body ache, joint pain, numbness & tingling, weakness, chemical sensitivity, weight loss, lump in the throat, feeling constantly sick
Sometimes Reported: difficulty finding the right words, feeling drunk, vomiting, intolerance to fatty foods, strong hangovers, acid reflux, excessive thirst, chest pain, muscle twitches, cold hands and feet, environmental allergies, swollen lymph nodes, toxic feeling, bitter or metallic taste in the mouth, eye pain
Occasionally Reported: waking panic attack, mood swings, feeling antisocial, intolerance to drugs, constipation, pale stools, indigestion, back pain, dry skin, feeling cold, low body temperature, pale skin, low weight, night sweats, excessive sweating, poor immune system, sore or dry throat, light sensitivity, bloodshot eyes
Symptom Groupings & Causation
Known Effect: Reduced Liver Function
Symptoms:
chemical sensitivity
intolerance to drugs
toxic feeling
Known Effect: Gastroparesis
Symptoms:
nausea -> vomiting, loss of appetite
feeling full quickly -> loss of appetite
abdominal bloating
heartburn / gastroesophageal reflux / indigestion
blood sugar changes (hypoglycemia)
lack of appetite -> weight loss -> low weight
Sub-Effect: Heartburn/Acid Reflux/GERD
Symptoms:
chest pain
difficulty swallowing
sore throat
bitter taste in the mouth
Note: This is the probable cause behind diagnoses of IBS, which is a catch-all for digestive problems without a known cause. Being that GS is commonly thought by doctors to be asymptomatic, the diagnosis of IBS will often be given when gastroparesis is the actual problem. Bolstering this fact is that remedies for acid reflux dont work and often make the situation worse, while remedies for gastroparesis have markedly positive effects.
Known Effect: Essential Tremor
Symptoms: tremor
Known Effect: Hyperbilirubinemia
Symptoms:
jaundiced eyes -> itchiness
jaundice -> itchiness
dark urine
pale stools (though this is more often a symptom of gallstones or bile duct obstruction)
Known Effect: Swollen Liver
Symptoms:
liver/gallbladder pain
abdominal pain
Known Effect: Immune Suppression
Symptoms: poor immune system
Known Effect: Gallstones
Symptoms:
pale stools
dark urine
jaundice
itching
abdominal pain
nausea
vomiting
back pain
abdominal bloating
intolerance to fatty foods
sweating
Not Yet Attributed
fatigue, tiredness, brain fog, headaches, poor memory, dizziness, depression, irritability, anxiety, stomach pain & cramping, insomnia, difficulty concentrating, panic attacks, hypoglycemic reaction to foods, intolerance to carbs, food intolerances, alcohol intolerance, loose stools / diarrhea, breathlessness or labored breathing, heart palpitations, aching muscles / body ache, joint pain, numbness & tingling, weakness, lump in the throat, feeling constantly sick, difficulty finding the right words, feeling drunk, strong hangovers, excessive thirst, muscle twitches, cold hands and feet, environmental allergies, swollen lymph nodes, metallic taste in the mouth, eye pain, waking panic attack, mood swings, feeling antisocial, constipation, dry skin, feeling cold, low body temperature, pale skin, night sweats, light sensitivity, bloodshot eyes
| Possible Link: Hypothyroidism Symptoms: fatigue tiredness depression dry skin cold hands and feet feeling cold constipation poor memory difficulty concentrating anxiety difficulty swallowing low body temperature lump in the throat feeling antisocial joint pain mood swings environmental allergies eye pain sinus pain light sensitivity dizziness headaches night sweats |
Possible Link: Chronic Fatigue Syndrome Symptoms: fatigue aching muscles / body ache brain fog gastrointestinal problems headaches sore throat insomnia low body temperature chest pain sinus pain rhinitis back pain loose stools |
Possible Link: Candida Symptoms: food intolerances headahces brain fog muscle aches joint pains sinusitis fatigue allergies chemical sensitivity constipation diarrhea mood swings numbness & tingling night sweats gastrointestinal problems irritability poor memory chest pain dizziness |
Symptoms Listed By Person
Following are the symptoms posted by people with Gilbert's Syndrome on the Gilberts Web Forums. In each case I have presented the symptoms reported in list form, followed by relevant quotes that provide more details. Note that in many cases these arent full lists of symptoms; they include posts on a specific topic and summaries of the most disruptive symptoms.
PERSONAL: From posts on Gilberts Web Forums
Me
Male, age 31
Bilirubin readings: 1.9, 2.2, 1.0, 1.8, 2.0
Symptoms: brain fog, headaches, poor memory, fatigue, food coma (hypoglycemic reaction to carbs), difficulty finding the right words, night sweats, swollen lymph node, jaw pain, sinus pain, trouble swallowing - food gets caught in throat near my thyroid, depression, irritability, feeling antisocial, toxic feeling all over, abdominal bloating, liver/gallbladder pain, kidney stones, cyclical sugar cravings/aversion, cold hands and feet, low body temperature (96.9-98.1), infrequent slight jaundice, shallow breathing, strong hangovers, feeling drunk the morning after drinking, exercise-induced exhaustion and nausea, allergies, multiple chemical sensitivity, tremors
Cycles: The symptoms generally go in 2-3 week cycles, though there are longer periods of feeling better or wose. Lately I've been in a longer period of feeling worse.
I have night sweats from time to time. Sometimes I wake up soaking, other times just certain parts of me are affected. The last time I awoke from night sweats (a few days ago), I took my temperature. It was 97.1, which is lower than it should be. Yet this is not an abnormally low body temperature for me - mine have always been about a degree lower than they should be. In the summer the ambient heat brings up my temperature a little, lately into the 98s. But if it's at all cool out, I'm in the 97s or high 96s. I've had sinus problems for a long time, and seen sinusitis listed as something GS people are suffering. Do many of you have sinus problems? What about allergies? Currently my sinus symptoms are strange - sinus pain and rawness, without the least bit of stuffiness. I can breathe clearly, but the pain, and the sinus headaches!1977
Male, age 25
Symptoms: tiredness, jaundiced eyesI have just been diagnosed with GS. I went to the doctors due to a very prolonged tiredness, it's been about 6 months now! All through my life I had been very tired when stressful events were going on around me. The worst was when I was at college, I would sleep all the time. The yellowing eyes I put down to being a bit tired. The problems I had when playing football I put down to being unfit.
80sfangirl
Female
Symptoms: fatigue, brain fog, clumsiness, headaches, depression, SAD, allergies, exercise-induced asthma, nausea, constipation, dizzinessI have gotten so used to ignoring my body's symptoms, I am not really sure what happens when I eat the "wrong" stuff. I occasionally get nauseous and kind of heartburny, but I usually ignore it. I went on this Liver Cleansing Diet mainly because it seemed to make sense. I mean, if my liver is not functioning at 100% because of the GS, then symptoms or not, wouldn't it be wise to do what I can to help it. Also, I have a tendency to be constipated, is that the GS too?
I have had symptoms of GS for years; fatigue, dizziness, foggy brain, etc... I have dizzy spells rather frequently. I am newly diagnosed, but I have always noticed that the dizzy spells corresponded with not eating soon enough.Adnomommy
Female, age 38
Symptoms: itchiness on arms and legs, sensitive stomach, dizziness, shaky (like hypoglycemia), jaundice when I don't feel well, slow to recover from coldsI get itchy on my arms and legs only, but it feels like the itch is coming from inside, and very sharp - like needles.
ajay
Symptoms: sensitivity to dieselPut me near any boat diesel...the smell will cause me to turn purple, sweat and locks my body up. I swear...my eyelids turn purple, not blue or red; purple! I can go on any boat, but a diesel so I don't think it's sea sickness.
Ajr8884
Symptoms: tiredness, loss of appetite, exercise exhaustion, jaundice, irritable, multiple chemical sensitivity, constantly sickI am always tired, not very hungry - and as a result skinny (it takes some good sensi to get me eating a lot!), VERY drowsy/exhausted after a lot of exercise, YELLOW - ALL THE TIME! especially when sick - or just WHITE like a sheet, generally grumpy/pissed off (I can admit that - now I understand), chemical intolerance (harsh reactions to food poisining - almost died a year ago from oysters)… I JUST FEEL SICK, ALL THE TIME, like there's always some kind of virus in me.
AKJoy
Symptoms: thick veins, brain fog, fatigue, numbness in arms and legs, tiredness, insomnia, feeling cold, aching muscles, headaches, loss of appetite, irritability, liver/galbladder pain, difficulty breathing3/28/05 - Right now I am looking at the veins on my hands and arms...they are thick and standing up under my skin. My head is really heavy, my thinking foggy. My arms and legs feel fatigued, heavy and yet numbing at the same time. And I want to lay down and sleep, but I can't.
7/15/5 - I'm still lethargic and slow today, but feeling more mobile. Yesterday, though, I was freezing cold for about three hours, and it was 75F here. I bundled up in thick blankets and my teeth still chattered. Then I slept, sortof, for about five hours, woke up feeling like a truck had run over me. My arms and legs still ache (muscles), and I have the edge of a headache.. I get the "no appetite" too, for about three days in a row. "Brain fog" is a great way to describe it. It's kinda transient too...comes and goes. Do you feel "scattered" sometimes too, like you can only handle one thought at a time or its gone!? Along the same lines, does this cause you to feel frustrated and irritated alot?
Alexp
Male, age 42
Bilirubin readings: 38, 65 fasting
Symptoms: tiredness, difficulty finding the right words, fatigue, body ache, constantly sick, dry flaky skin, jaundice, brain fog, dizziness, nausea, food intolerances, breathlessness, aching limbs, mouth ulcers, irritability, mood swingsI am nearly always lethargic and go into a trance like state on occassions (I actually like this as it leaves me feeling rested after) but friends find it hard as I have not got the energy to answer their questions and when im like this I tend to answer at least 5 mins later much to their annoyance, I lose my words regularirly and just lose energy quickly... I struggle to lose any weight when dieting and sticking rigidly to it... I ache all over and feel sick... I have also suffered with my glandular system, having had Tonsilitis, glandular fever, Quinzies, my glands are always coming up for even a mouth ulcer.
ALS02
Symptoms: poor memory, trouble finding the right words, difficulty concentrating, fatigue, brain fog, muscle aches, metallic taste in mouth, sore throat, indigestion, chest pain, insomnia, waking in a panic, POTS, tiredness, heart palpitations, chronic indigestion, liver/gallbladder pain, tingling in legs, headaches, sick feeling, lump in the throat, tingly tongueI was diagnosed with GS over 2 years ago. The fatigue, brain fog and the muscle aches come and go but recently others including a constant sore throat, odd metallic taste in the mouth, indigestion and chest pain have recently been diagnosed, following an endoscope, as Acid Reflux... Since the Acid Reflux diagnosis, I found that limiting my intake of acid inducing foods together with a PPI medication like Lansoprazole practically 'cures' the sore throat and indigestion and the related chest pain. My memory is also bad at times. I get what I call 'word drop out'! You know, when you just can't remember THAT word, THAT name, THAT place ... Also have difficulty concentrating - even hard sometimes to read something like a recipe correctly! I definately need lots of sleep to keep the fatigue at bay and interestingly prior to what I call a GS 'attack' when every symptom comes to call, I do have sleepless nights including waking in a panic, feeling like I have just had an electric shock or felt/heard a big explosion. I experience something similar on and off - you described it as 'seeming like the floor is moving up and down and back and forth' - I agree, I remember staring at the railway platform once and everything seemed spongy and moved as you described. It definately seems to be linked with one of my GS phases and I now try to eat regularly and keep hydrated. During the last week I have felt incredibly tired, had heart palpitations, chronic indigestion, pain under bottom right ribs and general anxiety which I suppose is only natural! All these feelings I have usually associated with GS - they come and go. I have had the same tingling feelings, sometimes all over but mostly in my legs for about a year now. It comes and goes, sometimes worse, sometimes better. When it's bad I also get a tingling feeling in my mouth and a metallic taste. My symptoms all started about 1994, 8 years ago. I had quite a busy lifestyle, lots of travelling around for work but not excessively so. Symptoms started as extreme tiredness, headaches, word drop out(!) you know what I mean, feeling sick, fast beating heart... I have had a few reoccurrences
andiuk1975
Symptoms: weight gain, muscle twitches, hypothyroidismNormally with GS they say people lose weight but despite increasing exercise and watching what I eat I can't seem to lose a pound (am about 2 stone overweight) and also get the muscles twitches pretty bad. My doctor said my thyroid is slightly underactive.
Andrew1974
Symptoms: jaundiced eyes, anxiety, depression, panic attacks, strong hangovers, poor memory, brain fogI've wondered why my memory is terrible and often beat myself up over it along with the brain fog. i discovered this site one week ago and everything fell into place and for the first time in years
Ank14
Symptoms: IBS, fatigue, stomach pain from alcoholAnthorr
Age 42
Symptoms: fatigue, feeling sick, low libido, general ill healthI used to get a cold every few months and would have to have a sleep in the afternoon after work most days just to be able to interact normally. I have been diagnosed with Gilbert’s for about 2 years and at the age of 42 that was a bit of a shock. After the initial diagnoses and spending some time looking around this site and others like it I have discovered that my life’s history of fatigue, sickness, low libido and general ill health was reflected in your stories and messages
Antnee
Symptoms: fatigue, stomach pains, depression, tiredness, hand tremors, loss of appetite, mood swingsI've also been feeling more tired lately. I've also developped a nasty shake, mainly in my left hand but I get it all over from time to time. I rarely eat meals, skip some completely even. I have up and down days. I feel OK today, but tomorow I could be right back down again. I have worse mood swings than a pregnant woman so I really feel sorry for the lady in my life. She's great and doesn't deserve me snapping at her all the time. I don't think its a primary symptom of Gilberts, but more a kind of secondary if you like. I get depressed because I'm always so tired and just don't have the energy.
Anujbahl
Symptoms: tiredness, nausea, headachesApart from feeling tired and nausea, I am encountering headache, this one is quite persistent, it goes ON and ON for 3 - 4 days and happens quite frequently.
Apoplexic
Symptoms: brain fog, headachesI suffer from "brain fog" regularly too. In fact, I'm pretty spaced out today which is very dissapointing because I've been concentrating on my diet for weeks, eliminating dairy, refined sugars, etc, and yesterday (Sunday, 27th Nov '05) I felt great and fully alert for the first time in ages. I went to bed a bit later than usual lastnight (11pm), blame Harry Potter for that, and now today I'm fogged out. It's 2:10pm and I still have an ache in my forehead and "pressure" behind my eyes and can't seem to focus on anything. I'm currently working a big database project and this is really impacting my ability to concentrate properly
ariannee
Symptoms: tiredness, allergies, food intolerances, intolerance to fat, intolerance to chocolate, nausea, headaches, bloating, stomach pain, alcohol intolerance, paleness, dizziness, irritability, weight loss, sugar cravings, weaknessSometimes I feel so tired it is hard for me to function, even if I am inactive. I also suffer from allergies and I used to think I had food allergies, because after eating fatty foods, chocolates, etc. I felt nauseated and so full I felt like never eating again. Other foods gave me headaches and I had to eat very little until the feeling subsided. But my allergies test did not react to foods… Some of the symtoms I've experienced are: tiredness, bloating, upset stomach, intolerance to alcohol, paleness, dizziness, irritability, weight loss that I find hard recuperate, cravings for sugar and chocolate, etc. Finally I was diagnosed with GS last year. At the moment I´m also taking a medication that brings nausea, otherwise, I only feel nausea when my diet is too fatty or if I eat too much chocolate, which I love.
ashley
Symptoms: nausea, dizziness, irritabilityI was just diagnosed this month after suffering with nausea for 1 1/2 years. i also find myself dizzy on occation (i always dismissed it. tired, hungry etc.) and find myself very irritable and short tempered.
Auggie
Female, age 30
Symptoms: depression, weakness, abdominal pain, tiredness, brain fog, dizziness, IBS, stomach cramps, jaundice, joint pain, migraine headaches, intolerance to fat, blurry vision, chemical sensitivity, nauseaazvessey
Symptoms: lump in the throat, food intolerance, enlarged thyroid, Sjogren's Syndrome, dry mouth, mouth ulcersI had the lump in throat, and the pain, especially after I drank milk. If I didn't drink milk at all the lump and pain eased. A subsequent CT of my throat proved that I actually had an enlarged thyroid. I went milk/lactose free for the next 4 years and the problem never returned. When I started the SCD diet I found that I could once again tolerate milk products but without the thyroid problem... It may be wise to first rule out Sjogren’s syndrome. Both I and another sibling share the Sjogren’s symptoms but my sister's are far worse than mine. All of my dry 'everything' symptoms, and the mouth ulcers immediately vanished when I started a form of the 'SCD' diet.
BaiCam
Age 45
Symptoms: heart palpitations, breathlessness, panic attacks, fatigue, alcohol intolerance, brain fog, poor memory, difficulty concentratingI also get palps, breathlessness and anxiety attacks but the main symptm for me is fatigue. I also suffer far, far worse when I drink than my friends. People (especially my wife) have often commented that they could 'smell the drink' on my body after a heavy night. I wonder if my body (liver) is trying to dispose of the alcohol through some other method in desperation to get rid of it.
BAMBBIII
Male, age 29
Bilirubin readings: 37, 48, 53, 67, 71
Symptoms: brain fog, difficulty concentrating, difficulty making decisions, poor memory, head and eye pressure, dizziness, fatigue, anxiety, irritability, bitter taste in mouth, hypoglycemic reactions to food, weight loss, jaundice, stinging eyes, short of breath, conjunctivitisI still have strange feelings impossible to describe clearly: I can't concentrate, feel like i am not very "present". For me it is the worst symptom for sure.
bammam
Symptoms: heart palpitations, anxiety, depression, tirednessi also had epstein barr virus at xmas, and that didnt help, i suffer palpitations, anxirty and depression, chronic tiredness
barpaul
Symptoms: headachesMy son has had migraines/headaches since being a toddler and has just discovered he has gs at 18yrs old.
BegForMe33
Symptoms: depression, tiredness, nausea, loss of appetite, jaundice, loss of appetite, lack of enthusiasmFor the past 3 yrs it seems to be worse. Generally I would be down, tired, nauseated,not hungry for just a few days, but lately I keeps me down for almost a month straight. Before I wasn't so "yellow" but now I'm a walking banana. I go for days on end with no food, I sleep 10 hrs a day. I have no energy, no enthusiasum, nothing.
billmc
Age 31
Symptoms: jaundiced eyes, fatigue, brain fog, sweatingMy own experience with gs started a couple of years back when i was 29. i fell ill with glandular fever for 4 months. my sister noted the whites of my eyes were yellow and during the testing for glandular fever,they found i had gilberts which had been triggered by gf. however over the last year,even though the gf has gone,i have had fatigue,"fuzzy" head, sweats etc.
Blackcurls
Symptoms: tiredness, sweating, nausea, panic attacksI am feeling very strained lately, I have sweats and vomiting like feeling - like food poisoning. I also have panic attacks and am under stress.
bloated
Male
Symptoms: pale stools, tiredness, liver/galbladder pain, food-related hypoglycemiaLight pooh coincides when feel tired, pain under right rib AND get VERY sleepy almost immediately after food. Happens about once a month ((I'm male).
BlupperLevi
Symptoms: tiredness, headache, digestion problemsAfter I was tested to have no more grandular fever I still had CFS-like (Chronical Fatigue Syndrome) symptoms. Now my symptoms (tiredness, headache, digestion problems) are declining
Brannon1975
Age 25
Symptoms: headaches, dizziness, fatigue, depression, stomach cramps, irritabilityI am 25. I've been plagued with headaches, dizzy spells, fatigue (8 hours of sleep and i still feel i could use a little more), and episodes of just feeling "blah". I can have days where my stomach is cramped before I finish eating… I also tend to be depressed a lot and cranky quickly
Brett
Male, age 24
Symptoms: dizziness, fatigue, anxiety, depression, hand tremors, floating stool, tips of fingers change colors, weight loss, loss of appetite, jaundice, breathlessness, brain fog, drunk feeling, numbness in body, cold hands and feet, joint pain, aching lower legs, insomnia, headaches, aches behind eyes, itchiness, irritability, lower back pain, swollen glands, abdominal swellingim a 24 yr old male who has suffered with many of the symptoms people list here since the age of 13
Symptoms experienced: floaty stool (not sure if this is related), tips of fingers change colour regulary (white/yellow/purple), weight loss (due to not feeling hungry and feeling nautious), breathlessness (not sure as if this is more related to my embolism or if what im experiencing is due to GS), a general numbness in my body (not to touch but a struggle to move), i find it hard to get to sleep my brain wont shut down but when i eventually do get to sleep i find it hard to wake up, even if i sleep a good amount i awake feeling like i havnt slept in days.I have flu-like symptoms always accompanied by a lower back pain swollen glands and a itchy burning sensation aggrivated by touch all over my skin.
These symptoms seem to happen over a period, gradually getting worse before they get better,, used to be over a time of around 2 weeks good 2 weeks bad, but recently things seem to have been getting worse and for longer periods of time 3 months bad for maybe 2 or 3 weeks of feeling good.
brianmcnutt
Symptoms: poor memoryBob19541
Symptoms: itchy skin, loss of appetite, feeling sick, cant think straight
brett
Symptoms: body ache, tiredness, fatigueiv had days when my body ached so much or when iv felt that iv had no energy that iv struggled or not even been able to get our of bed.
BuffaloMike
Symptoms: eye pain, tingling fingertips, tingling joints, fatigue, easy to get sick, insomniaOne of the first signs that I'm having an "episode" is my eyes starting to hurt (eye drops don't make a difference for me) and tingling in my fingertips and joints..if I don't address it right away then I get heavy fatigue and can catch a cold easily that lays me flat on my backside for a couple of days. another problem I have is even though I can get fatigued I suffer from insomnia..
Burnside
Symptoms: heart palpatations (from coffee), stomach cramps
Caniv
Male, 14
Bilirubin readings: 90-159
Symptoms: poor memory, brain fog, jaundice, enlarged liver, enlarged spleen, headaches, fatigue, itchiness, slow recovery from illnesscarenmarie
Symptoms: depression, loss of appetite, fatigue, mood swings, tiredness, insomniaCarol1503
Symptoms: panic attacks, stomach cramps, IBS, nausea, poor memory, get drunk quickly, extended hangover, lump in the throat, burping, tingling tongue, swollen abdomenThought I'd had a reprieve from GS but for the last three weeks its back with a vengance. I have also suffered mega panic attacks, stomach cramps, IBS, really nauseaus, and generally feeling that I can't cope. Anyone geting really bad memory loss? Did you find that you became drunk very quickly? Sometimes just one drink makes me feel very tipsy and the following day I suffer with hang over symptons. My husband says I am now a very cheap night out.
Carragher
Symptoms: IBS, back pain, alcohol intolerance – gets itchy and tingly arms, dry skin rash on arms and legs.Other: Symptoms begin at 37.
Cat2005
Symptoms: abdominal pains, tiredness, feeling cold, liver/gallbladder pain, gallstonesI was diagnosed with GS about 8 years ago through abdominal pains and blood tests, but have not had many symptoms so far apart from always being tired and cold. However, in the last few months I have been getting pain under my right rib, which has turned out to be a gallstone
Chad
Age 25
Symptoms: stomach problems, IBS, fatigue, lack of energy, depressionI was diagnosed last year (sept/01) with Gilberts. I'm 25 years old. I've had stomach problems for as long as I can remember. I was told I had IBS (my mother has IBS). This was untrue. I use to get stomach so bad I was doubling over and had to lie down. I was also fatigued all the time. Never had any energy, and couldn't have my stomach touched. Pain pills did and still do absolutely nothing for the pain. I take Milk Thistle and have been prescibed Elavil to relax my stomach muscles. The severe pain I use to have is gone. I don't get fatigued like I use to… I get depressed when my stomach pain flares up. Usually from something I ate, but sometimes I can't put it down to anything I had eaten or done.
Chakotay67
Symptoms: nausea, fatigue, dizziness, loss of consciousness, upper abdominal painsi was in my early 20's i still had the symptoms,although i only weighed 170lbs then i was suffering from nausea,chronic fatigue,dizziness to the point of passing out and upper abdominal pains.
Christina Davidson
Symptoms: hypoglycemia, tremors, sweating, irritability, jaundiced eyes, itchiness, SAD, poor recovery from infectionsI have real problems with blood sugar control and get hypoglycaemic easily, with shakes and sweating and really bad moods. I am occasionally yellow around the eyes and my skin itches like hell sometimes. I feel grumpy in the winter and need to get some sun around about February (I am in th UK) and my husband is only too well aware of the consequences of me not getting those rays! Sleeping 8 hours + is essential for me and I find it hard to function otherwise. I exercise moderately and find it beneficial. However, infections leave me low for months at a time.
ChrisW
Male, age 29
Symptoms: fatigue, tiredness, loss of stamina, exercise-induces exhaustion and nausea, poor immune system, blistering fingers and toes, slow healing, hand tremors, jaundiced eyesI'm a 29 year old male from Melbourne, Australia. I was recently diagnosed with GS… My range of symptoms are as follows. They tend to cycle up an down - for a few weeks I feel not so bad, then for a few weeks I feel terrible and my body feels like its falling apart.
* Fatigue - sometimes so overwhelming that just lifting my arms feels like a big effort.
* Tiredness - I used to stay up all night writing my thesis a couple of years back. Now I am often falling asleep in front of the TV at 11pm-midnight. This was unheard of before. Sometimes hard to stay awake at work if I don't get plenty of sleep (I used to live fine on 6 hours sleep a night).
* Loss of stamina - in school I was a long distance runner. My stamina was my best athletic attribute. Now any intense athletic exertion wrecks me. Five minutes of basketball a few weeks back nearly had me throwing up. I was acting as if I'd run 10 miles. I also got this weird metallic taste in the back of my mouth.
* Poor immune system - when I'm going through a bad phase I get almost constant colds and/or throat infections, and I never fully recover before the next one starts. I also break out in a nasty skin condition that gives little blisters on my fingers and toes. The GS doesn't cause these conditions as such, it's more that it weakens my body's defences so I'm susceptible to a lot more things.
* Slow healing - I used to heal from cuts and wounds extremely fast, it amazed my wife. Now I heal very slowly.
* Tremors - I sometimes get mild hand tremors.
* Yellow eyes - my eyes are yellow except for a white ring around the iris. This is a blessing because the yellow isn't so obvious unless the eye is turned or rolled back. My skin has a general yellow tinge as well.
Cjhardy
Symptoms: jaundiced eyesClaireHild
Symptoms: depression, body aches, fatigue, dizziness, stomach crampsclaire16
Age 17
Symptoms: poor memory, brain fogClaireS
Female, 32
Symptoms: nausea, fatigue, liver/gallbladder pain, stomach pain, dizziness, body tremors, twitching muscles, lump in the throat, food getting stuck, acid reflux, flatulence, gas, chest painI'm a 32 year old female and I've been feeling dreadful for a few months… I feel nauseous most of the time, have no energy whatsoever, have a pain on the right just below my ribs and suffer burning type pains in my stomach. I have also suffered from dizzy spells in the last few months and an almost constant fine tremor all over my body, but especially my legs. I also find muscles 'twitch' uncontrollably in different parts of my body.
Clipitgoodruthie
Symptoms: food intolerances, crawling skin, pain in lower right abdomen, intolerance to sunlightclogsdon
Symptoms: waking panic attacks, breathlessness, chest pain, digestive problemsCrazy4goofy2003
Symptoms: stuttering, bloating, cramping, muscle aches, joint aches, tiredness, blurred visionI have been feeling like I am stuttering. My husband says its like I have been drinking and I din't drink. I always have bloating and cramping and my muscles and joints ach all the time. I also feeel like I don;t get any sleep even when I have slept for 8-10 hours. One other one that I have noticed recently is my vision is blurred and foggy.
Crismatt
Female, age 16
Symptoms: CFS/ME, fatigue, poor memory, difficulty concentrating, stomach pains, abdominal pains, headaches, jaundiced eyes, pale skin, nauseaMy 16 year old daughter was diagnosed with GS early on this year. This was after many months and dozens of blood tests and examinations. One doctor said that she thought she also had ME. My daughter had terrible fatigue, memory lapses, lack of concentration, severe stomach pains and headaches, yellow eyes, - the list goes on and on... We can always tell when a bad episode is going to happen. Her eyes become more yellow than normal and her skin is very pale. Her latest bout has lasted for about 2 weeks. For the first time she has been pysically sick instead of the usual terrible nausea. Painkillers and anti-inflammatery drugs dont work... Think we have found out why she has been so ill for the last couple of weeks. It looks like she has been worse 'cos of antibiotics she has been taking. They should not have been taken 'cos they are bad for the liver.
Coyote
Symptoms: heart palpitations, fatigue, dizziness, brain fog, anxiety, depression
Cstarr
Female, age 28
Symptoms: pain on lower right side, dizziness, brain fog, headaches, tiredness, frequent urination, hypo/hyperglycemia, heart palpitations, loss of appetite, caffeine intolerance, toxic feeling, conjunctivitisPain on lower right hand side - almost like a hot burning sensation which can last for a few days, Tiredness - cant seem to get enough sleep, Need to pass urine often - esp at night, sometimes up to 10 times, Sugar levels - up and down like a rollercoaster, I cant seem to handle much caffeine anymore - I rarely drink Normal tea but I can't give up chocolate, I don't drink coffee or coke, General feeling of being a little bit poisioned - this tends to happen the day after I've drank alcohol but can happen at any time.
Daddydan77
Symptoms: alcohol-related abdominal painDan06
Symptoms: alcohol intolerancealcohol hangover lasts 5 days
dananna
Symptoms: low temperaturemy husband was diagnosed with GS many years back.... since I've known my husband his body temperature, when normal, is 96.8 degrees.
Dantodan
Symptoms: fatigue
DaveH439
Bilirubin readings: usually 38-49, but as high as 72
Symptoms: fatigue, fibromyalgia, tiredness, insomnia, jaundice, allergies, IBS, dry throat, sore throat, metallic taste in mouth, toxic feeling, waking panic attack, kidney pain, muscle aches, neck pain, alcohol intolerance, feeling of numbness, itchiness, restless arms and legs, depression, anxietyI have fatigue and have been diagnosed with fibromyalgia but despite feeling very tierd I have problems getting the right sort of sleep or even getting to sleep sometimes. I had Yellow Jaundice at 16 and this hit me hard. In my 20's I suffered allergies... In my late 20's I was diagnosed with IBS... The biggest problem that has got worse over a period of time though has been the fatigue... I was also hit by a mystery viral infection and one of the things I suspected was Glandular Fever although nothing was ever diagnosed except GS. At that time it was the first I had ever heard of GS and knowing more about it has helped in some way.
I suffered from, and still get, the dry throat, recurrent sore throat, and I reported at the time I was very ill a strong metallic taste I had in my mouth. The metallic taste has not returned thank goodness. I did feel as though I had been poisoned. I had the worst times at night and would often have problems sleeping. When I did get small amounts of sleep I would often wake within the hour gasping for air and feeling I had just had an electric shock... I do sleep now but I am often woken by a sharp pain but mine seems to be in the lower back on both sides. This often lasts most of the day but can sometimes clear altogether but will return to wake me most mornings.
I get a problem now with general muscle aches, the literal pain in the neck, and of course the familiar fatigue.
In the early years it seemed to make no difference in a debilitating way as it seemed to be an inconvenience rather than an illness although my intolerance to alcohol was sometimes an experience I would rather forget (Bit of the never again syndrome). Things went downhill for me about eleven years ago after a viral infection. My intolerance of many drugs prescribed to try and resolve the problem only made matters worse. The long term effect of the viral infection left me with Fybromyalgia. I got terrible muscle aches all over. If I sat at the computer for even short periods my neck would ache and no amount of normal painkillers would even touch this sort of pain and discomfort.
When I was at my worst with an unknown viral infection I had the pins and needles and then a very strong taste of metal for some time. My sense of taste is still not what it used to be and my tongue, especially the tip, often gets sore for no apparent reason. The itching I get especially after eating and in particular over my back. In one spot on my left shoulder blade I could justify the use of a sanding machine at times but I can't reach! I get general itching all over including both my legs. I only scratch out of reaction I am sure, as it is the type of itch that I just can't get to. Often my arms and legs get restless and I just can't get comfortable no matter where I sit if you know what I mean. This leads to interrupted sleep and fatigue.
davidsmother
Male, age 16
Symptoms: jaundice, fatigue, enlarged liver, stomach pains, bowel problems, weight loss, loss of appetite, joint aches, depressionDavids_mother
Male, age 15
Bilirubin readings: 3.0 - 4.3
Symptoms: cold hands and feet, fatigue, jaundice, intolerance to fried foods, tremors, muscle twitchesI am the mother of a 15 year old boy with Gilbert's syndrome. He seems to have extreme symptoms. BR 3.0 to 4.3, icy cold white hands and feet, fatigue, started with yellow eyes and skin but now looks gray and his eyes are dull looking. He does not tolerate fast foods. He has some tremors and twitches. He sometimes sleeps 12-14 hours a day when feeling like this. He has an intolerance to antibiotics and antihistamines... I would like to get a little weight on him as he is 6 feet, 135 lbs, but alot of time he is just not hungry.
Deano
Symptoms: (awaiting the board's return)I am a nurse and have been wrongly diagnosed with Chronic fatigue, etc etc. I have exactly the same symptoms as you which come and go, with the only trigger being exercise (strenuous) that I have found so far.
DerekUK
Symptoms: depressionderulz
Symptoms: night sweatsi sometimes wake up in the middle of the night with sweats.
Desmo101
Symptoms: muscle twitches, tiredness, muscle aches, sugar intolerance, gallbladder twitchingI was diagnosed last year with gilberts. I just started a few weeks ago to have irregular muscle twitches and my muscles in the arms and legs seem to get tired and sore easily
digital
Symptoms: nausea, severe cramping, fatigue, paleness, jaundiced eyes, depressionI get severe cramping and nausea to the point of actually getting sick. Total fatigue so i dont even want to get out of bed, pale and some yellowing in the eyes. I've had many friends and co-workers comment on how i look sick (oh i feel so attractive on those days!) I get some depression (just the other day I told my boyfriend there was no way I could be happy with my life right now...poor him), but that isnt as consistant as the other symptoms.
Diplomat
Age 21
Symptoms: fatigue, nausea, chest pains, poor memory, bloody nose, sore throat, apathy, depression, light sensitivity, loss of appetiteI am a 21 year old college student and while I haven't been "officially" diagnosed, the doctor has actually said he's 75 to 100 percent sure it is Gilberts Syndrome. The doctor has ruled everything else out, including Lyme, Hepatitis, CFS, and other Liver problems. I've had a dozen blood tests, a sonogram, and an x-ray, and been placed on Zoloft for 6 months (which really tripped me out). My main symptoms have included severe fatigue to the point of almost passing out, nausea to the point of sickness, unexplainable chest and upper body pains (like mini-heart attacks, pinches, and needles), chronic memory loss, bloody noses, sore throats, complete apathy, depression, sensitivity to light, lack of appetite, and a dozen other things.
dmy222
Symptoms: poor memory, brain fog, ulcerative colitisI get very bad short term memory for small things although have high iq, anyone else get these symtoms? (also get mental fogginess or inability to think clearly - mind wanders all the time) Also used to suffer from UC until had bowel operation.
Donkey20048
Male, age 20
Bilirubin readings: 52, 47, 44
Symptoms: tiredness, weight loss, loss of appetite, jaundice, feeling cold, stomach cramps, abdominal cramps, dizzinessDoug
Symptoms: tremorsI get tremors too, I think it has something to do with needing sugar/food, people with gilberts seem to need a lot more "fuel" than other people.
dozyveeny
Symproms: fatigue, depression, IBS, tiredness, headaches, food intolerancesI had glandular fever about twenty years ago, easily the worst illness of my life. I was in my final year at university and barely made it through, but the following year I had to drop out of a post-graduate course through sheer exhaustion. There followed a couple of years of fatigue and depression, but eventually began to feel normal again. Within the next few years I began getting symptoms of IBS - tried all the usual remedies without much improvement. It got worse, I started having headaches so severe that if I didn't lie down I fainted. I thought I had food allergies, tried different diets, eventually tried a detox diet (from a book by Jane Scrivener I think) definitely felt better
Dreading
Symptoms: poor memoryIt never even occurred to me as a symptom, but my lack of memory would be funny...if it didn't impact the development of my career. I was having trouble passing the bar and did some cognitive testing. In most areas, analysis, long term memory, etc., I was in the 80th or so percentile. So I'm reasonably smart all around. And in verbal abilities, I was in the 98th percentile. But guess where I was with short term memory? The 17th percentile!!! 83% of the US population in my age group has better short term memory.
dsoque
Symptoms: jaundiced eyes, insomnia, tiredness, feeling cold, chattering teethI was just recently diagnosed with GS. I had myself checked when my friends noticed yellowing of my eyes plus I have trouble sleeping (which I attributed to stress from work), tired a lot and I had chills, my teeth were chattering and I can't seem to understand why I'm always cold.
Dudeyindiechick
Symptoms: itchingElwyvalleyman
Symptoms: heat-related itchiness
Englishdave
Symptoms: abdominal pains, gallstones, intolerance to anestheticFeb 2001 started getting some abdom pains, did nothing about it,eventually went to doc in April , blood tests showed high numbers so sent to consultant, scans showed stones in gall bladder, gb removed in June - anaesthetic took hold for 3 weeks!!! head all over the place, felt remote and distanced, off work for 6 weeks
Eric
Symptoms: low temperature, jaundiced eyes, bloodshot eyesI also have a low temp, its always been 97.5.
Felipe21
Symptoms: joint pains, abdominal cramps, nausea, dizziness, jaundiceI have very few of the symptoms described by some of you, just rarely do I have joint pains, abdominal cramps, nausea, dizzyness, yellowness in the skin.
ferret119
Symptoms: acidic stomach, jaundice, nausea, panic attacks, itchiness, abdominal pain, IBS, lump in the throatThis site is full of people reporting a cluster of symptoms that I have had for years, like acid stomach, jaundice, nausea, panic attacks, itching, abdominal pain, IBS, lump in throat, etc. Also the experience of a viral illness earlier in life - I was in hospital in my early twenties with a mysterious virus and took a year to recover.
FraterSkepticos
Symptoms: fatigue, poor memory, difficulty concentrating, depression, low weight, inflexibilityFatigue (which always maked me feel very bad for being "lazy" and not having a "strong will")
Froggigirl
Female, age 17
Symptoms: stomach aches, fatigue, garlic sensitivity, food coma, nausea, jaundice, loss of appetite, tiredness, intolerance to fats, tremors, loose bowelsbad stomach aches and fatigue, garlic sensitivity... i tend to feel the worst at lunch or just after. i don't function well in the afternoons...i've been diagnosed with GS and while i suffer from fatigue, nausea, stomach aches... i don't get jaundice much. just sometimes when i'm sick from something else... i'm a 17 year old female from Australia, and after about 10months of medical problems i have been diagnosed with GS. originally i was really healthy and had no food intolerances (except garlic), then half way through last year i got this virus thing and i was really sick. i never seemed to properly recover. I'd frequently feel nauseous, loose my appetite and i was SO tired. i kept comming home from school and sleeping for an hour after getting 10-12 hours sleep the night before. i began to notice that i felt the WORST when i'd eaten highfat foods like chocolate and mcDonalds. consequently, i had a million blood tests and ultra sounds. abnormal high levels of bilirubin showed up and the doc thought that it was a post viral thing since the tests also showed up i'd had CMV and glandular fever at some point (apparently you can have it and never know)
frequent stomach pains across abdoman, shaking, usually at night, sometimes loose bowels, usually depending what i ate, very low tolerance of high-fat foods. find if i have a constant, small amount i still feel horrible. so no chocolate for me! the stomach pains are the worst. sometimes i find they hurt more if i'm lying on my right side?? i've also noticed that i tolerate fatty foods less when i have my period.
Frontier
Symptoms: headaches, intolerance to fats, intolerance to sugarAll these headache you are getting are from GS.. From my experience..when one eats something that is to heavy for the liver//Fat/Oil/Suger// one gets migraines. Its funny how the liver effects every part of your body.
FRUITY2K
Symptoms: heart palpitations, high blood pressure, dark urine, dizzinessi have other problems too, high blood pressure for which i take drugs and cholestral too,for which i take meds,i put palpataions down to blood pressure,but may it isnt. got new doc and routine test picked up bilirubin,dont know if he has looked at my records and sen i got gs or not,if he has may be he now thinks its some thing else,i have very dark yrine,does any one else? and get so dizzy. (Note: the cholesterol medication may be getting rid of bilirubin, causing the dark urine)
fv1620
Symptoms: migraine headaches, loss of consciousness, intolerance to alcohol, joint painProne to headaches leading either fainting/spaced out or right sided migraines into eye.- brain scans normal. Can only take low levels of alcohol, without severe hangovers, which is a shame. Pain/sticking joints in small fingers & some toes - checked out not gout or rheumatoid arthritis.
Gambit10101
Symptoms: tiredness, brain fog, difficulty concentrating
Galyemex
Symptoms: multiple chemical sensitivity, intolerance to alcohol, nausea, dizziness, bloating, food intolerances, liver/gallbladder pain, waking from liver pain, headachesI think others have talked a little bit about this before on this site, but I, too, have terrible reactions from gas fumes, cigar smoke, certain perfumes, etc.....headaches, nausea, dizziness. I always thought they were allergic reactions, but could be this is somehow connected with GS. Also can't drink alcohol, especially red wine. The next day I'm bloated and swollen....and generally feel like crap. I also have tons of allergies...dairy, wheat, soy, etc. It will be very interesting to see if this is a comon problem with GS sufferers. Also, I have a low tolerance for medicines and have strong reactions to chemicals...gas fumes, etc. I also have a pain or soreness over the liver area, on the edge of and over the ribs. It's always there, but sometimes it's much worse. And the pain often wakes me up at night. My pain is usually over the liver area, near the edge of my ribs (of course, on the right side). But sometimes it´s even on top of the ribs. Sometimes it´s just a soreness, but other times, it´s sharper. Nothing really horrible, just bothersome more than anything else. But it won´t go away! And I can´t seem to relate it to anything I do or eat. I´ve had many tests, all negative, except for the GS. I also have headaches a lot...have all my life.
Gewitterstochter
Symptoms: fatigue, depression, asthma, migraine headaches, multiple chemical sensitivity, nausea, swollen abdomen, liver/gallbladder painExhaustion, which severely limits my social life, which few people are willing to understand, which severely limits my friendships, which is terribly depressing and isolating. So I'd say that fatigue, with linked depression and a sense of hopelessness, is at the top... elevated hemoglobin... GS diagnosis 29 years ago when they didn't know what caused it. Also have asthma, migraine… (Has trouble with paint and varnishes) I have to move out when the place is being painted and if a piece of furniture is refinished it has to stay in the garage for weeks. And it's definitely liver stuff, nausea, swollen & tender right side upper abdomen.
Gibs25
Symptoms: stomach problems, IBS, chrons disease
Gilbert
Female, age 49
Bilirubin readings: 55
Symptoms: anemia, B12 deficiency, low platelets, gallstones, liver pain, occasional diarrhea, jaundice, tirednessBlood work slightly abnormal with no real explanation
aneamia - possibly due to red cell destruction which can occur with GS HB around 10
Glandular fever two years ago, GS diagnosed at this time.
gallstones, due to red cell destruction
Gilbert & Sullivan
Symptoms: liver/gallbladder painGilbertMadrid
Symptoms: depression, IBSI get bouts of deep, paralyzing depression on an all too regular basis. My mother has always linked Gilbert´s and the type of listless, melancholy I suffer for about one week out of every month but up until now I ignored this wisdom (will I ever learn!). My mother also blamed Gilbert´s for the IBS-like symptoms I present on a regular basis… The cycles of my bouts of depression know no logic. They come when I´m enjoying success in my work, when relationships are going well or when it´s summer equally as often as they come during rough times.
GKA25
Symptoms: low blood pressure, depression, feeling antisocial, heat intolerance, lump in the throatI have GS,low blood pressure,depression no pep.Don't like to go outside much.Im pretty antisocial.I don't like hot temperatures. I do also have a lump in my throat that comes and goes and was suspicious that something was wrong.I checked the thyroid and it came back normal.
Gmacek
Symptoms: fatigue, dizzinessI've also had more symptoms like fatigue, dizziness, which I've had on and off my whole life, etc.
Gman
Symptoms: jaundice, fatigue, joint pain, alcohol intolerance, tiredness, irritabilityGryphon84
Symptoms: exercise-induced nasuea and vomiting, lack of sleep-induced nausea, loss of conscious during blood takingI know after intense physical activity or severe lack of sleep I can pass out and throw up. And When I have blood taken I pass out as well.
Gsmitty1987
Symptoms: fatigue, jaundice, stomach pain, hypoglycemia, trouble breathing inits a stuggle to fully breath in. i was told it was due to anxiety and stress. (referring to heavy feeling, trouble breathing in) this october i started getting massive stomach pain. to make a long story short, after many many tests they found that my stomach lining has almost completely deteriorated. they dont know why, (mabey reflux) but while being treated for this about 3 months later they found out that i have GS.
H
Symptoms: cant gain weight, loss of appetite, dizziness, brain fog, tirednessI have been able to eat what I like all my life without putting on weight. The down side is that if I am stressed I struggle to eat which means I loose weight very quickly, I still force myself to eat 3 meals a day though.
Hal9999
Symptoms: tiredness, aching limbs, sweating, poor memory, brain fog, liver/gallbladder painMy experience seems so typical of everyone else here - you'll laugh. A series of inexplicable symptoms, a visit to the doctor, two blood / urine tests for nothing specific. Diagnosed with GS, a harmless syndrome with no effects at all, apparently. As for my symptoms; tiredness and aching limbs, sweating, memory loss, brain sometimes feeling and performing like porridge, pain in lower right abdomen when ill / hungover / exercising – these were all a bit of a mystery according to the old doc, bless him, but definitely nothing to do with GS.
Hally m
Female, age 43
Symptoms: fatigue, headaches, toxic feeling, IBS, bloating, diarrhea, acid stomach, itchiness, black around eyes, poor memory, brain fog, dizziness, blurry vision, stomach pain, bad handwriting, weakness, hypoglycemiaGlandular fever at 18 with recurrences, loads of antibiotics - I feel this is relevant in some way to the level of problems GS causes me. Thanks for flagging up the cyclical nature of the symptoms, everyone. One of my main symptoms is the need to eat regularly - I have major problems with weakness, feeling faint etc if food is late. I have to be very careful to eat food with a stedy release of energy.
General feeling of being 'toxic' - as though all the nasty stuff is hanging around my system too long - sometimes a cup of coffee can make me feel bad for a Bad handwriting - yes it's true, I've just discovered that any condition that affects the liver also affects handwriting - I had to change my sample signature at the bank because it had deteriorated so much - so we can blame that on the GS, too!
hally s
Symptoms: headaches, fatigue, black eyes, IBSThis same doctor attributes headaches, fatigue and black eyes to GS but can't see a link with the IBS symptoms (in my case, tests show problems with candida.)
hayesmoore
Symptoms: depression, SAD
Imgeha
Female, age 38
Symptoms: headache, pain behind eyes, jaundiced eyes, nausea, tremors, feeling cold, liver/gallbladder pain, fatigue, blurred vision, irritability, depressed, hypothyroidismConstant headache - worst in the morning when I wake up - assume it's because the bili levels are high because of overnight fasting
Blurred vision when the symptoms are worse
Naturally I'm depressed with all these symptoms.
Symptoms seem to come and go in a cycle - 2/3 weeks feeling awful, followed by maybe a week of feeling OK, before I enter another cycle - very disheartening to feel rotten again after starting to feel normal.
indiamoon
Symptoms: depression, headaches, tiredness, abdominal painJaindough
Symptoms: intolerance to fat, intolerance to carbs, bloating from starchesjaneve
Symptoms: fatigue, depression, yellow eyesJaninepiper
Female, age 29
Symptoms: jaundice, fatigue, brain fog, depression, intolerance to wheatJaundice and fatigue can be made worse by to much exercise and wheat!
japgirl83
Symptoms: tiredness, jaundice, stress, body aches, loss of appetitejaundicedjim
Symptoms: panic attacks, bowel spasmsYes, I think you and I have had the same thing--in terms of "panic attacks". I am usually sitting when I have mine, and I feel relaxed or at least not stressed. Then suddenly I get butterflies in my bowels (kind of like butterflies in your stomach, but it makes me feel like I need to go to the bathroom rather than vomit). Then it leads to that spasm and adrenaline rush.
Jaydarling
Symptoms: jaundice, itchiness, depression, alcohol intolerancealcohol causes jaundice 3 days later
Jeanneke
Age 38
Symptoms: fatigue, dizziness, brain fog, tiredness, low blood pressure, difficulty concentrating, tremors, muscle twitches, itchinessI had GS diagnosed at about 30 after complaining of fatigue, dizziness and "brain fog" and awful need to sleep... My "usual" doctor, when I complained of fatigue, low blood pressure, dizziness etc, would put it down to stress, overwork and so on. He'd give me calcium and magnesium (which tended to help), a few days of rest and send me on my way. When the symptoms got really bad, specially dizziness, brain fog and lack of concentration. I quite often get small muscle tremors and twitches (in eyelids, fingers and so on) but these have always been diagnosed as indicating a "lack of magnesium" and not as being related to GS.
jeelbear
Symptoms: slow digestion, stomach bloating, pale stools, jaundice, fatigue, body aches, loss of appetite, allergies, brain fog, anxiety, depression, low fever, sweating, blurred vision, nausea, bad taste in mouth, pale skin, insomnia, weight loss, lump in the throatI noticed three weeks back my digestion slowed way down, stomach bloated, and the pale stools followed. A few days later I was a little yellow, barely noticeable. Then extreme fatigue, body aches, no appetite, horrible allergies, foggy head, anxiety (good grief!) and depressed feeling. Forgot to add low grade fever, sweating, blurred vision, nausea, bad taste in my mouth, pale skin, and can't sleep very well...
Here it is again. All the symptoms I used to have (I remember them like it was yesterday). Unbelievable, and brought on by stress I have no doubt... I had almost forgotten how awful this was, and I guess I thought it would not happen again since I take fairly good care of myself, but boy was I wrong. So much stress in my life right now that it makes perfect sense it should happen now.
JH1
Symptoms: fatigue, headaches, feeling hung over, weight loss, thirstheadaches lasting for days, waking up feeling like I have a hangover
Jill
Age 46
Symptoms: liver/gallbladder pain, pale stools, nausea, jaundice, weight loss, fatigue, joint pain, muscle pain, itchy feet, cold feet, swollen hands, mouth ulcers, hair loss, cold sores, slow healing, unexplained bruisingEight years ago I had my gall bladder + 28 stones removed. This took years to diagnose and I now realise that I had had the symptoms of stones since my early 20's (I am now 46). For the last 12 months I've had a very "eventful" time of liver malfunction and ill health, following a nasty viral type illness in Feb 2001. This 'virus' came back again in July & November and my symptoms have been constant since July - including constant ache and frequent sharp pain from the liver area, pale 'sludgy' floating stools or passing grey stools in yellow 'water', occasional nausea & retching 1st thing in the morning (I'm not pregnant!) mild jaundice, periods of rapid weight loss, fatigue, joint & muscle pain, itchy soles & cold feet, swollen hands, mouth ulcers, hair loss, recurrent cold sores, spots & cuts that don't heal, unexplained bruising on legs. The symptoms seem to come in 'episodes' and then I'll be quite a bit better until the next one hits. I have tried to relate them to diet etc - can't see a link but I have noticed that any physical stress, including exercise, colds and menstrual cycle, exacerbate the symptoms. My bilirubin levels have been all over the shop from test to test and my ALT levels have been slightly raised but constant throughout.
Jim
Bilirubin readings: 33, 39
Symptoms: loss of appetite, nausea, anxietyI have just been diagnosed with GS. I am experiencing a severe loss in appetite and also have mild nausea. The thought of not getting my hunger back is making me very anxious.
Jimi33
Symptoms: nauseaI was just diagnosed with GS a month ago after suffering nausea for the past 4 months. I have no symptoms, other than nausea. However, I never actually throw-up. I always feel as though I will, and a few times I'll heave, but not once have I vomited. The slightest amount of stress, such as the trip into work or being in large crowds, makes me ill. I have found that 'Tums' antacid provides a very temporary relief (suck on it slowly to make it last longer) but as soon as it's gone the syptoms reappear, though not as harsh.
Jimmy T
Symptoms: brain fog, difficulty concentrating, poor memory, lower back pain, tremors, tingling legs, fatigueDoes anyone suffer from a 'foggy' head which can cause a variety of concentration-related problems (some of them quite funny)? In this state I find it hard to maintain listening to what someone is saying, or maintaining a thread of thought in an essay or suchlike. Other things are extreme forgetfulness, like I've walked into a room to get something specific and left with something else; then remembered and gone back in, but AGAIN come out with something else. I get words muddled up too. One typical example is getting first letters mixed up. Yesterday for example, I said "Hox Funting" instead of... well you can guess. I also get the lower back pain, quivering hand/wrist muscles, tingling legs and extreme fatigue, but I find this 'foggy head' to be the most frustrating/enjoyable aspect of the syndrome.
JodieToadie
Symptoms: nausea, vomiting, dehydration, fatigue, abdominal pains, weight loss, IBS, dizziness, irritabilityIt started on a holiday in Malta in June of this year, I was vomitting, and severly dehydrated. I ended up in hospital and put on a drip and doctors said that I had gastroenteritis. For a few months afterwards I was suffering from nausea, vomitting, fatigue, abdominal pains etc and the doctors hadnt a clue what was wrong with me. I was being sick all the time and unable to eat - losing weight rapidly too. They did all kinds of tests including endoscopy, sigmoidoscopy, barium meal x-rays, ultrasound. I was poked and prodded whilst in pain but nothing abnormal was found.
Eventually the doctors said I had IBS and was depressed / stressed and this was what was causing the symptoms. I had been told I had Gilberts syndrome but that was besides the point as GS didnt have any recognised symptoms. After being in and out of hospital 5 / 6 times I was prescribed antidepressants, anti emmetics & and anti acid tablets for my stomach and sent home once again. The doctors were concerned that I was anorexic too and it was hard to convince them otherwise. All this not knowing what was wrong with me was making me very low but the reason for not eating was because I felt so sick all the time.
johnanimation
Age 33
Symptoms: weight loss, tremors, tirednessI have had GS symptoms for 6 months now… I was living a normal life before and doing lots of sports. Physically I felt great. Now I lost 15 pounds and am just a shaky, weak, grey, and tired person.
Johnboy
Symptoms: itching, intolerance to carbs
Johnz8
Symptoms: abdominal sensitivity
jonsher
Symptoms: tirednessMy son is a 100m/200m sprinter who has just been diagnosed with Gilberts Syndrome. The doctors say it will not affect his sport and when he is well it doesnt, however he has bouts of extreme tiredness which can last a week or more and he is unable to train.
Jules
Symptoms: brain fog, dizziness, fatigueI've had brain fog, dizziness and fatigue for 8 months.
justingarcia
Symptoms: dizziness, brain fog, difficulty concentrating, poor memory, trouble finding the right words, word substitution, fatigue, depression (emotional flattening)
K Ball
Female, age 15
Symptoms: depression, cramps, nausea, headaches, difficulty concentrating, carb-related food coma.My 15 year old daughter was told several months ago she had GS, after many blood tests, scans, etc.
Katchow
Symptoms: tiredness, fatigue, protein intolerance, carb intolerance, jaundiceprotein causes jaundice and nausea, carbs cause fatigue
katem
Symptoms: stomach aches, fatigue, kidney stones, jaundiced eyesUnexplained tummy aches as a child, glandular fever at 13, fatigue from then on (much worse in the past 18 mths falls asleep many afternoons and evenings) kidney stones, mid 20's. Routine bloodtest following stones revels Gilberts. his eyes are always off white and yellowish if he is down with anything.
Kate Lerwill
Symptoms: fatigue, tiredness, stomach pain
Kathyus
Symptoms: fatigue, tiredness, headaches, multiple chemical sensitivity, nausea, itchinessI have many of the symptoms that I have read about on this great site, especially fatigue and general malaise. I also suffer from headaches occasionally. Strong smells, especially smoke, gas or diesel, and perfume make me feel very ill to the point of wanting to vomit.. For me, my skin is especially itchy in the winter and if I am somewhere there is a lot of smoke or other pollutants. It seems to help if I drink LOTS of water when this happens.
kdhsgf
Male, age 31
Bilirubin readings: 30-50
Symptoms: anxiety, depression, tiredness, liver/gallbladder pain, gas, multiple chemicle sensitivity, brain fog, difficulty concentrating, poor memory, head and eye pressure, dizziness, headaches, fatigue, irritability, bitter taste in mouth, hypoglycemic reactions to food, weight loss, jaundice, stinging eyes, heart palpitations, toxic feeling, IBS, difficulty putting on weight, mucus in stool, hypotension, numbness, pins and needles feelings, insomnia, joint pain, night sweatsI had a cyst which turned out to be a bilirubin deposit... I had been diagnosed as having Gilbert Syndrome about 2 months ago... I suffered from anxiety problems, and went into depression... I am always tired, when ever I over exercise I get it worse: (takes me a while to recover). I was at some stages quite bad that I would nearly faint (not sure if this was anything to do with my anxiety attacks)… It does have the tendency to be quite debilitating. I began to get pains around my liver and a lot of gas... I have experienced the same thing with fumes of any chemical kind... Some days are better than others.
- when i feel hungry I can eat loads and not put on weight...
- hypotension (getting up from lying down and spinning out)
- numbness in certain areas (I had a pain on my left arm that freaked me out but dissapated the moment i lifted some weights on it)
I have had strange nights of sweating heaps... sometimes I wake up and my pillow is totally drenched... I guess the heat has something to do with it... but I haven't sweated that much since I had a fever...kellysymington
Age 18
Symptoms: constant sick feeling, depression, mood swingsi was diagnosed with gilberts disease today. i found out i had it by having some blood tests because i felt sick all the time. im 18 and ive suffered with depression for about 4 or 5 years and ive never known why. i cant control my emotions at all and this feelings of anger and sadness come on quite suddenly for no apparant reason.
Kendra45
Symptoms: multiple chemical sensitivity, swollen liver, frequent illness, allergies, enlarged spleen, diarrheaI have to have a mask with me everywhere I go so I do not come in contact with ANY diesil fumes or gas exhaust, my stomach (liver) swells with any reaction to these with horrible pain for days. I am sick at least once a week with something. I have MANY allergies. I have an enlarged spleen. I have constant diarreah up to 4 or 5 times a day.. My Dr. prescribed Prilosec for my acid reflux. I noticed it said that if you have any liver problems you should not take it.
Kerrylnelson
Symptoms: depressionkevdarada
Symptoms: night sweatsI sometimes wake up and my top is completely soaked. It use to happen after weight training that day , but now happens if my immune is dysfunctional.
Kerrylneson
Symptoms: fatigue, bowel problems, feeling sick, alcohol intolerance, tirednessI was diagnosed with Gilberts syndrome about 3 months ago. I have had these symptoms for approx the past 5 years and just assumed i was tired.
Kim
Symptoms: jaundiced eyes, bitter taste in mouth, dizziness, fatigue, headaches, underweight
Kim40
Symptoms: anxiety, difficulty concentrating, poor memory
Kitty
Symptoms: fatigue, tiredness, difficulty concentrating, severe anemia
Kimmy Kims
Female, age 20
Symptoms: migraine headachess, fatigue, abdominal pains, constipation, diarrhea, dizziness, IBS, food coma, problems with periods, tiredness, loss of appetite, nausea, allergiesI was diagnosed with GS last week. I also suffer from IBS, diagnosed a year ago… my dr put me on the birth control pill among a few other meds, in which my reaction was to gain a great deal of weight in a short amount of time… Since that time, I had alot of trouble in school because I was always exhausted, even though I got at least 10 hours sleep each night… What I find, and always have, is that I have NO apetite. I eat alot of high protein, low carb foods. I make myself eat atleast 3 meals a day.. but it's hard getting the food down. My GS symptoms are: ALWAYS tired! Especially after I exercise - I exercise at Curves atleast 3 times a week, but find that I just have no energy to get started, and by time I'm done, it's bedtime for me. I get very dehydrated (even though I drink about 150oz of water a day). I have alot of "brain fart" (as my friends refer to them) moments. I can get very nausiated. I don't know if that is related to the GS or the IBS. I can get severe gas-type pains in my stomach and abdomin. My IBS is still not under control. It tends to run in a 2 week cycle: 2 weeks of constipation followed by 2 weeks of non-stop diahrea. I also have ALOT of allergies. Seasonal, dust, cats, some dog, most pain killers - morphine, codeine, naprosyn, penisyllin among others. I also get migranes. I find they tend to come only after eating high-carb, high sugar or sugar substituted foods, caffine, breads.
koko6ka
Symptoms: depression, panic attacks
LauraH
Symptoms: jaundiced eyes, tiredness, insomnia, loss of appetite, tremorsLaurasharpy
Age 17
Symptoms: jaundice, fatigue, abdominal pains, low libido, tingling/itching legs, metallic taste in mouthi have recently started to get weird tingling pains in my legs - something i cant really explain, but its like the nerve endings in my legs are tickling, or itching and i cant get to them - its weird and it usually occurs when im laying down. i have started getting a weird taste in my mouth - kinda tastes like blood, but when i check theres no blood!
laurentdupont44
Symptoms: jaundiced eyes, stomach pain, intolerance to fat, alcohol intolerance, joint pain, itchiness, swollen glands, white tongue, anxietylildvez
Symptoms: tirednessI was diagnosed after I had Mono and never seemed to get better after that I was still really tired and never regained my energy like I used to have.
Lisa
Female, age 42
Symptoms: headaches, severe PMS, depression, anxiety, panic attacks, obsessive thinking, itchiness, fatigueI have Gilbert's, have battled severe PMS symptoms for 20 years or so. Now that I'm older (42) the PMS seems to be getting worse, especially headaches.
Since my early 20's (I'm 42 now) I have suffered from monthly migraine headaches, depression, anxiety, panic attacks (these are better now), obsessive thinking, bouts of itching, and fatigue. I have headaches that last for days. My doctor prescribed Imitrex (which is for migraines) and is very effective. I find this to be a very strong drug, however, helps me get through the day at workLisa1702
Symptoms: tiredness, brain fog, feeling drunk, wobbly legs, tremors.My symptoms were very similar to yours, very tired, heavy, spaced out, foggy headed, drunk like feeling, wobbly legs, and sometimes physical shaking… I went to see an endocrinologist who admitted me to hospital for two weeks to run some thorough tests. His conclusion was ME/Chronic Fatigue syndrome.. But one thing that did show up in my blood tests results was that my level of cortisol in my body was too low. This is the hormone/steroid which regulates blood sugar and energy levels. I was put on a course of hydrocortisone (cortisol tablets) for 6 weeks – this made a huge difference, my symptoms reduced by 75%.
Liverish
Symptoms: fatigue, irritability, depression, brain fog, poor memoryI have always struggled with my energy levels, especially when I had young children and a pretty hard back-to-the-earth lifestyle. I ate pretty healthy food throughout... I'm particularly interested in the foggy brain and poor memory stuff on the website. My daughter and I both suffer acutely from this and beat ourselves up about it, but I've never connected it with GS. Just thought it was another crummy thing she'd inherited from me!
Lozza
Symptoms: fatigue, depression, difficulty concentrating, poor memory, anxietyWhilst at College I started to suffer from fatigue, depression and concentration difficulties…
LucyUK
Symptoms: poor memory, trouble finding words, antisocial, fatigue, weight gain, brain fogI have horrible memory too. I have to write everything down. Shopping can be a real problem I have to take a list, but writing the list can be a problem too.
Even conversation is a struggle recently, can't seem to be able to form whole sentences - forget whole words. So I've become withdrawn, don't tend to join in as much. It's as if there are several loose connections in my brain, sometimes they work and sometimes not... I have to write everything down, especially the kids activities or I'd forget to collect them. I worry that one day I will, as I still have to try and remember to check my lists!Luppo31
Symptoms: IBS, depression, brain fog, poor memory, dizziness, liver/gallbladder pains, tiredness, insomnia
Macara
Bilirubin readings: 43-57
Symptoms: breathlessnessI was recently diagnosed with Gilberts after having too blood tests done on my liver with readings between 43- 57. Of late i have been feeling breathless and having a heavy feeling similar to that of asthma, but do not have the wheezing of asthma, and can still reach reasonable levels on a peak flow meter. My problem is with getting air in, not out.
Maddy
Symptoms: abdominal pain, nausea, lump in throat, muscle pain, headaches, fatigue, insomnia, gland pain, indigestion, stomach problems, chemical sensitivityPain in right side (liver), left (spleen), nausea, lump in throat causing me to gag and stop eating (theres a name for it which I don't remember, its the liver saying don't send me any more food, I can't PROCESS), muscle pain (like lactic acid buildup but for no reason), headaches, such total fatigue I could barely walk, restlessness and insomnia, pains in my neck (glands) so severe I couldn't turn my head, indigestion/stomach problems so bad I had to sleep sitting upright... I was VERY lucky that, tho I now know the symptoms are shared by many of you with GS, I was able to find out the true cause of them. I had a toxic reaction to toner dust from laser printer which was malfunctioning in a non-ventilated area. It took a year to figure out and another year to recover, mostly by my own research of symptoms and changing to as close to a zero fat, low protein diet (to let liver work on toxins not fat) and vitamin regimen.
Madmother01
Symptoms: IBS, tiredness, lethargy, muscle twitches
Marcusserrano
Symptoms: fatigue, brain fogmark23
Symptoms: tremors, tiredness, panic attacks, insomniaMarkd
Symptoms: stomach pains, chest pains
markskur1
Male, age 19
Symptoms: abdominal pains, IBSMy 19 year old son has been diagnosed with GS. He has been suffering severe abdominal pains for a year, has had EVERY test: Ultrasounds, MRI's, CT-Scans, ERCP.. his "liver specialist" says the GS is benign, and he has IBS. They even removed his gall bladder in June, and he is still suffering as I post this! He is an active college student, who is having problems attending class because of his stomach pains. The only thing that calms him down is constant showers.
martin
Symptoms: nausea, acid reflux, dizziness, difficulty concentrating, fatigue, brain fogI just had a hell of 3 weeks with real bad nausea. I felt like I was going to vomit but nothing came up. I too have had gastric reflux for a few years but thought it was due to CFS/ME and not GS. I know I have Gilberts syndrome, cos it came back with high bilirubin almost ten years ago when i had a sudden onset of dizziness and concentration problems and fatigue. This was said to be Post-viral fatigue syndrome or ME. it must be ME what I have had for 10 years, although i seemed to recover twice. Now I am going through a bad patch again with fatigue and cognitive symptoms (do u get brainfog....where u can't concentrate and it feels like cotton wool in ur brain!)
martinbristol
Symptoms: fatigue, nausea, flushed face, muscle twitching, yellow stoolsI sometimes suffer from the same problem (me: yellow poo) when i am having a GS "attack". My main symptoms are fatigue, nausea, flushed/red face in the morning, muscle twitching (eyes and legs).
MartinD
Symptoms: alcohol intolerance, strong hangovers, indigestion, acid stomach, tiredness, liver/gallbladder pain, bloated abdomen, jaundiced eyes, fatigueI first started to notice that I just couldn't stomach the beer anymore, and hangovers got unbearably long... Now I have to avoid too much alcohol or junk food, or normally just leave it out altogether, else pay the price... My main problems are indegestion, constant acid stomach and tiredness, with a lots of discomfort under the lower left rib (I'm guessing this is my stomach as it's always worse after a meal?). Bloated stomach after eating too much or the wrong thing, and general short sharp abdominal pains during digestion, plus slight yellowing in the corners of the eyes when feeling rough. The fatigue is also a bind too, I need a solid 8 hrs sleep else I feel worn out.
martinlong1978
Symptoms: fatigue, abdominal pains, heart palpitations, dizziness, feeling drunk, headaches, neck and back pain, brain fogI have felt terrible, non-stop, for the last six months. Here are some of the symptoms I have felt (tell me if you can relate to this)
- terrible fatigue, mid afternoon I feel i NEED to sleep.
- aches and sometimes crippling abdominal pain
- palpitations. Quite disturbing at times
- dizzyness. sometime like be perpetually drunk
- headaches - the pressure can sometimes build up
- intollerance to alcohol. major hangovers after 1 or 2 beers
- neck and back pains.
“Being permanently drunk” was the only way I could describe the 'foggy' head to the doctor.
I get palpatations too, and my blood pressure, EKG, and chest X-rays were all normal.MazG
Age 35
Symptoms: stomach pain, brain fog, poor memory, nausea, dizzinessMy brain-fog has always been an issue. I used to say that it was like my head wasn't connected to my body. Sometimes I find it impossible to concentrate when holding a conversation or in a meeting (its almost as if I don't even hear the other person talking).
Michael40378
Age 25
Symptoms: stomach problems, reactions from eating, bloating, tingling armsIm 25 and was just diagnosed with GS after doing some blood work due to stomach problems. My question is does anyone feel strange after eating? Sometimes I feel fine but yet other times I get very bloated and feel wierd almost like I am getting tingling sensations in my arms.
Mike260980
Age 24
Symptoms: vomiting, muscle aches, tiredness, alcohol intolerance, strong hangoversIm 24 and just got diagnosed with gilberts. For a quite a while ive been throwing up all the time in the mornings, muscles ache all the time, im always tired. Also it aslo explain why after a couple of beers i feel really pissed and get the mother of all hang overs.
Mini Tay
Age 19
Symptoms: tiredness, weakness, paranoia, antisocial, depressionI am 19 years old and I was diagnosed with Gilberts syndrome about in 2000. I began to feel tired and weak after working over Christmas, my doctor told me after one set of blood tests but did another to confirm it wasn't any other liver disease. At first the symptoms were just constant tiredness, which I put down to working a lot of overtime. As I had more and more experiences of GS I noticed that I felt paranoid when I was out in public, as if people were watching me and because I was also feeling slightly depressed this made me very unhappy.
MissCox
Female, age 27
Symptoms: fatigue, anxiety, weight loss, fever, nausea, depression, toxic feeling, SAD, alcohol intolerance, strong hangovers, meal-related problemsBack in January, I started to not feel well. I was exhausted all the time, was suffering from anxiety and lost weight… I continued to feel exhausted, and had the fever for 2 1/2 months. I felt anxious and was getting extremely stressed. At times I'd feel nauceous, unmotivated, and I was starting to get depressed. Usually the party girl, I was not going out at all, not organizing parties, and I was losing contact with friends. My boyfriend said he couldn't even remember what I was like when he first met me (about 4 months before all this started). I would say things to my boyfriend like, "I feel like I have bile running through my blood - I know that's impossible, but that's how i feel," or "I think I have Seasonal Affective Disorder, I feel better when the sun's out!" My tolerance for alcohol went down. One time I drank one glass of wine while out with friends. I felt like I had poisoned myself - I coudl feel it running through my body, and I felt awful. Other times, I was ok to drink - one night I had about 2 1/2 beers - I got completely drunk, and the next day I was so hungover, I felt like I had gone on a bender... I do get fatigued very easily, and sometimes I just have weird sensations - like it feels like my brain is cold. Strange. I still feel anxious sometimes, but now that I've learned that it's not becuase I'm crazy, it's because of something going on inside my body, I'm able to deal with it better. I'm also noticing that I feel waves of anxiety/tiredness/weakness after meals.
MistiB
Symptoms: jaundice, abdominal pain, fatigueRecently we decided to paint our house and the night of I started experiencing GS symptoms. I started getting abdominal pains and every time I would eat I would get sick for 3 days. My eyes turned yellowish and by the 3rd day I had no energy to walk down the hall.
mkhnjy
Symptoms: fatigue, loss of appetite, jaundiced eyesmonzasproggy
Symptoms: tirednessMoonie007
Female, age 22
Bilirubin readings: 1.7
Symptoms: fatigue, sensitive eyesI also have Raynards syndrome and had Glandular fever two years ago
Mouscelia
Symptoms: nausea, numbness/itching/tingling, abdominal pain, fatigue, bowel problems, GERD, brain fog, reactive hypoglycemia, jaundice, CFS, fibromyalgia, anxiety, depression, obsessive behavior, sinus infections, multiple chemical sensitivities, interstitial cystitis, food intolerances, elevated hemoglobin, muscle aches, swollen glands, dizziness, headache, muscle twitching, esophogeal spasmsI have been so fatigued that I have been sleeping for 12 hours at a time and still have trouble getting up. My muscles are aching like a bad flu, and my glands are swollen in my neck. I have no infection, nor a viral illness that I am aware of. I have seemed to be getting episodes closer and closer together... I am feeling really weird today with it seeming like the floor is moving up and down and back and forth. I'm afraid that I'm going to fall or walk into a wall or something. Every time I get up I am so dizzy... Now my muscles are twitching and I have a pins and needles sensation all over my body... I have been getting awful esophagus spasms that squeeze all the way down into my chest, extreme fatigue and nausea, and also a headache when i am feeling this way.
Mnol
Female, age 56
Symptoms: sensitive stomach, nausea, alcohol intolerance, medicine intolerance, heart palpitations, esophositis, brain fog, dizziness, anxiety, low temperature, poor memory, weight loss, poor handwritingI just found out I have GS
mto1
Female, age 37
Bilirubin readings: 86
Symptoms: panic attacks, brain fog, numbness, tiredness, jaundiceI was diagnosed about 7 months ago. It started with (what I know now to have been) a huge panic attack, something that had never happened to me in the past… Anyway, the fuzzy, numby and tired feeling would not go away, so the same week I went back to the doctor and he noticed I looked a little yellow.
I run 3 times a week, about 40 to 50 min sessions. Sometimes it wipes me out and other times it makes me feel great. I think it depends on what level my Bili is at.
naomi block
Age 33
Symptoms: wheat intolerance, brain fog, poor memory, nausea, fatigue, irritability, constant hunger, diarrhea, itchiness, chemical sensitivityI'm 33 and have recently been diagnosed with GS... I think that eating lots of white wheat based products makes things worse for me, seem more foggy and find things more difficult to recall in my brain. The other day I had to ask my partner what the band that Freddy Mercury played in was called, and then 2 minutes later I had to ask him again... my memory is hopeless too, but not all the time, seems to be effected by things, if only I could work out what.
NewGilbertsSufferer
Female
Symptoms: vomiting, fatigue, weakness, skipped periods, dizziness, feeling drunk, depression, lump in the throat, burpingWhen I am affected by this illness, I throw up about twice a day, and the symptoms go for about 2-3 weeks. It comes and goes. I get extremely fatigued, and weak. I can barely get out of bed to go to school. I also lose my period when this happens. Some of the symptoms I get from GS are:
1. Vomiting- usually about 2 times a day. (my particular case is on and off. My bouts with the illness last about 3 weeks, and go away for about a month, and come back for about another 3 weeks.)
2. Fatigue- I get tired very easily. Getting out of bed is a big ask for me.
3. Weakness- Lifting my head, or my arms and legs is extremely difficult. Sometimes I feel like I can't move, and that I'm immobile.
4. Dizziness- I feel very lightheaded, and feel like I'm continuously drunk...not a great feeling.
NeverWithIt
Symptoms: fatigue, tiredness, brain fog, jaundiced eyes, poor digestion, depressionI've always suffered from fatigue since my early teens. However, problems really kicked in when I fell asleep for two hours after eating a chocolate bar… I get most of the symptoms described by everyone else here: Fatigue (some days I can't even move), Brain fog to the point where there are moments where I can't even remember the names of friends, pale yellow eyes, a digestive system which acts like a cement mixer and depression.
NFox
Symptoms: bloating, abdominal pain, tiredness, dizziness, feeling drunk, nausea- Bloatedness (suffering from it today even though I haven't eaten much!!)
- Extreme tiredness, sometimes too much sleep can be as bad as not enough
- Dizziness, especially when I stand up quickly. This has gotten worse over the years and had an effect on my vision. I'll explain below.
- Nausea. Especially in the morning. A kind of motion sickness feeling...never enough to make me heave but irritating all the same. I always have breakfast too, even with this feeling.
nick2211
Age 22
Symptoms: jaundiced eyes, nausea, weight loss, brain fog, feeling lightheadedI am 22 years old. I was hit with gs this past summer as well as something called cmv. MY cmv is supposedly gone into remission so I am only dealing with GS now. I have read this whole forum and I have experienced basically every symptom mentioned.
nickadiemus
Symptoms: loss of appetite, nausea, jaundiced eyes, weight loss, anxiety, fatigue, tiredness, bloodshot eyesNielzz
Symptoms: feeling hung over, brain fog, feeling sick, vomiting, jaundice, cough, headaches, swollen glands, low temperature, exercise-related exhaustion, tiredness, swollen joints, poor memory, dizziness, allergic skin reactions, abdominal paincough for seven years,sometimes so bad I had to vomit.
undertemperature(35,7 -36,5)NikkiUK
Symptoms: poor memoryNiky74
Symptoms: tiredness, fatigue, headaches, abdominal painsI often feel so tired that even after 10 hours of sleep feel I could drop at any time, I also suffer frequent headaches (at least twice a week) which I always related to the tiredness. I also get abdominal pains if I don't eat properly which I always put down to wind.
Nilsth
Make, age 24
Bilirubin readings: 32
Symptoms: nausea, fatigue, loss of appetite, migraine headache, jaundiced eyes, depression, anxiety, stomach pulse, tiredness, toxic feeling, ill feeling, prickly feeling around mouth/hands- often feel better in the evening
- not been able to find a pattern as to when I get sick
- similar symptoms to hyperventilation. I don´t breath fast, but get a prickly feeling around my mouth and in my hands.Female, age 45
Symptoms: nausea, fatigue, loss of appetite, migraine headaches, poor memory, cold hands and feet, stomach pulse, tiredness, toxic feeling, ill feelingMy mother (45) also has GS. She has been sick for 13 years.
- sometimes feels like the stomach takes all the energy from the body
nmollo
Male, age 51
Symptoms: vertigo, uncertainty, fatigue, weak legs, tremors, stomach pulse, anxiety, depression, difficulty concentrating, poor memory, poor handwriting, itchy eyes, light sensitivity, low libido, white tongue, bitter taste in mouth.GS detected me when I was 22 years old.
northerner
Symptoms: poor memory, intolerance to carbsYes, I have exactly that problem! But especially with short term memory like, "what happened this morning again?". I've thought for a while that bread made me worse so it's good to see someone else has similar symptoms.
nuaa0
Symptoms: dizziness, disorientation, blurry vision, tremors, panic attacks, irritability, numb/tingling armsthis whole last year... i am very dizzy feeling, looking beyond 10 feet (especially disoriented walking and or doing any physical stuff, like lifting..).. blurry vision on and off (even tho a new eye test was good).. just feeling very yucky all day, but night comes, and i seem to start to feel normal.. have the "shakes" in both my hands, here and there, especially if i don't eat right away.. panic attacks.. irritated easy (thinking it was the humidy and heat).. my arms seem to go a little numb (tickles) laying down, like i fell asleep on them.. i had tooth pulled, and the dentist gave me antibiotics.. had a chest flu right after that, and was also put on antibiotics.. and thinking back now, that was about the same time i started getting these symptoms.. in the states, i hardly ever had antibiotics except for major problems (like an severe ear infection).. i see some people here seem to have the same trigger that may have started the gs.. also i have had a fair share of stress, mother and sis died, big move to australia, work has slow down greatly, marriage probs, etc. etc.. and then the stress of not knowing what this dizziness was scaring me to death
nullcontext
Symptoms: poor memory, dyslexiaMy memory sucks. But I'm also dislexic... It seems to fluctuate from day to day. Some days it seems I have a great memory and other days I can hardly remember my own name.
offadinglight
Male, age 21
Bilirubin readings: 49.6
Symptoms: brain fog, blurry eyes, pale skin, jaundiced eyes, abdominal pain, underweight, tiredness, anxiety, difficulty concentrating, enlarged spleen, chocolate cravingsOla
Symptoms: difficulty concentrating, tiredness, headaches, anxiety
Oliver
Symptoms: fatigue, brain fog, irritability, depressionAbout 18 months ago I started having episodes of what I have come to call my 'Dreaded'. Symptoms are extreme fatigue, a feeling of a black fog in my head and an irrational depressed and irritible mood. Symptoms appear on waking, last between 1 day and eight days and then disappear completely overnight.. I have not been able to identify a trigger, although my two worst episodes were after a bout of flu last spring and then after a flu jab last autumn. I have had many episodes however that have just come out of the blue for no apparent reason.
Oni2230
Bilirubin readings: 3.4 - 3.7
Symptoms: jaundiced eyes, dizziness, blurry vision, fatigue, depression, anxiety, body tremors, hypoglycemic reaction to food, headaches, vitreous floaters, underweight, heart palpitations, irritability, liver/gallbladder pain-fatigue (usually in early afternoon)
-body tremors (leg shakes, sometimes uncontrolable)
-headaches (when not eating properly)
-vitreous floaters (change in severity)
-heart palpitations (rarely)
Osti
Female, age 44
Bilirubin readings: 43, 33
Symptoms: jaundice, itchy stinging eyes, fatigue, brain fog, hypoglycemia, diarrhea, poor memory, bloodshot eyes, itchy burning feet, difficulty concentratingDiaorrhea coincides with menstrual cycle (mid cycle and during menstruation so may not be relevant to GS)... Symptons escalated 6 years ago coinciding with me giving up caffeine (which apparently reduces bilirubin). Have always struggled to recover from illnesses and viruses. Have prevously been diagnosed with post viral fatigue, stress & depression
Pagiboy
Symptoms: multiple chemical sensitivityI have troubles with common consumer products, like soaps, shampoo, laundry detergent, cleaning chemicals, etc., basically anything with a fragrance or scent. So, I live a fragrance and chemical free life and practice isolation and avoidance. I wear a mask when I drive and venture out into the public for doctor visits, grocery shopping, etc. My social life is limited to the phone, TV and Internet. I feel like I am being tear-gassed or will fall to the floor when someone with perfume/cologne walks by me. I first noticed my sensitivies to cigarettes. They always bothered me, but suddenly, they really became troublesome, and then more and more substances started to bother me, to the point where I am sensitive to just about anything now that is even slightly toxic.
parkin98
Symptoms: irritability, dizziness, anger, mood swings, depression, nauseaI too am irritable and kind of dizzy at times (usually when I'm o/tired). I always used to be fairly irascible but now get very cross with people, whereas I used to be able to keep the lid on it. Also am fairly emotional and am easily moved to tears (usually of frustration or self-pity: I'm not ashamed to admit), whereas formerly I would have committed ritual suicide rather than cry in public.
Paul
Male, age 23
Symptoms: anxiety, tremors, jaundice, fatigue, weakness, intolerance to fat, intolerance to alcohol, heart palpitations, brain fog, low temperature, cold hands, difficulty concentrating, digestive problems, esophogeal problemsYellowing of eyes and skin, fatigue and feeling weak after exaggerating on fat food or after taking drinks with a high rate of alcohol
I also had some digestion and oesophagus problems in the last two months but with the aid of some digestion pills they seem to be going away.
Paul B Moore
Symptoms: jaundice, fatigue, loss of appetite, digestive problems, joint pains, poor stamina, heat intolerance, adverse drug reactionspaulbarclay
Symptoms: jaundiced eyes, leg tremors, IBSIve had GS for a few years and seem to have just about all the symptoms from yellowing eyes to leg tremors to IBS
Penguins4ever
Symptoms: fatigue, loss of appetite, exercise-related exhaustion, frequent thirstI am always tired, and almost never hungry, but I do eat a lot (I am a teenager, just no appetite). Even the smallest amount of exercise fatigues me.
pete1959
Symptoms: itching, acid stomach, constantly feeling sick, bad taste in mouthI have had this symptom in conjunction with acid feeling in the stomach and feeling "bile" in the back of the throat. Was diagnosed with Gilberts but also had liver/alcohol issues. Since cutting out alcohol altogether 12 months ago I have had a vast improvement of all the Gilberts symptoms. Also found doctors dismissive of Gilberts. I had glandular fever when a boy and have never felt brilliant since. Have frequently felt the "nagging infection that won't go away" feeling. Does anyone else get the horrible taste and sort of itchy furriness in the mouth?
petebray
Symptoms: itchy eyes, fatiguePhilip
Symptoms: feeling constantly sick, dizziness, jaundice, fatiguePinawa
Symptoms: fatigue, brain fog, nausea, irritability, feeling constantly sick, lump in throat, difficulty swallowing, dry throat, easy to lose voice, dry eyes, dry lips, frequent thirstDo you ever feel like your tongue is swollen in your throat? I have problems recently trying to swallow vitamins - they get stuck. In the last year or so I have had a very dry throat. I also get a very itchy throat and ears!... I lose my voice after one night out in a noisy place these days - do you reckon it could be related to the thyroid tissue buildup/swelling? I also had glandular fever... I have dry throat, dry eyes, lips, and low saliva together with recurrent mouth ulcers... I have been doing a Candida diet (theory of yeast overgrowth in the body that can cause many symptoms - similar to those of GS!) which cuts out all sugars that yeast feed on - it seems to have cleared up the mouth ulcers pretty much for now... the pain is real and it worries me, along with worsening fatigue, brain fog, nausea, irritability, continual flus and colds
Piper42
Symptoms: itchiness, dizziness, loss of appetite, fatigue
Piraterocker
Male, age 26
Bilirubin readings: 20s - high 30s
Symptoms: toxic feeling, fatigue, brain fog, tiredness, nausea, anxiety, sick-looking eyes, jittery, diarrhea, problems with foodi have been feeling bad for 1 year 4 months, now i got cold/flu type it felt morphed, never went away, felt TOXIC, really sluggishly, after tons of test, got slapped with GS label, and doctor trying to push anti-deps on me... I have had symptoms similiar to yours the past month and half. This is so wierd, how long this lasts. I'm started to feel brain/fog. nerves. Mostly because of how long this has been going on. I do not feel nausea now, but i feel tired alot and my mind I wanna go play soccer and run around, but my body is sluggish... My symptoms seem to come in cycles now for the past 4 months… I well start to feel better for a week or two, then i well feel the (GS) type symptoms for a week... Mainly when it starts i feel the fatigue, sluggishly, toxic feeling, then the anxiety or nervous feelings, then the stomach stuff. this lasts about a week, then start to feel better, never 100%, but then in about 2 weeks or so it starts over again.
Pj
Age 30
Symptoms: depression, chest pains, bowel problems, vision problems, difficulty gaining weight, insomia, night sweats, itchiness, tiredness, antisocial, irritability, anger, fatigue, A1AD, IBS, Pigment Dispersion Syndrome, diarrhea, back pain, joint pain, burning ankles, gum disease, poor vision, liver pain, acid reflux, headaches, allergies to antibioticsSEVERE insomnia due to cold sweats and itching
SEVERE night sweats (Bed soaked, have to get up)
insommnia maybe due to other problems, but often wake up throughout the night
Back and joint pain (symptoms of swollen lymph glands, made me paranoid about many other conditions)
My ankles burn like hell if i stand up for more than a minute or so. This is actually more annoying than any other symptom, and gets no sympathy from others. I have a varicose vein, but gp says not related, and it happens in both ankles.pmj398
Symptoms: fatigue, brain fogFor me the worse part is the fatigue and brain fog.
quokka2001
Age 30
Symptoms: swollen jaw lymph nodes, dizziness, fatigue, poor memory, difficulty concentrating, stomach pain, liver/gallbladder pain, strong hangovers, jaundiceI was diagnosed with GS 12yrs ago when I was 18 and still have swollen lymph glands under my jaw and side of neck. They have never increased/decreased in size and sometimes ache when tiered or suffering from the common cold. My Dr advised that this was to do with my lymphetic system not being able to filter the bile correctly.
Rainbowwarrior
Female, age 19
Symptoms: nausea, vomiting, panic attacks, anxiety, tiredness, loss of appetite, allergies, food-related fatigue, exercise-related nausea, stomach pain, intolerance to fat, food intolerances, lump in throat, jaundice, brain fog, difficulty concentratingmy main symptoms of gilberts involve stomach problems (nausea, vomitting). I also get panic-attacs and anxiety triggers, but I'm not sure it's from gs. ... I'm a nineteen year old girl, and at fifteen I got diagnosed with GS… It all began with a schooltrip to Italy (I'm from Holland). In Italy I got really sick, with really vague symptoms. Felt awful tired, and really nauseous. Couldn't eat, except for some fruit. Didn't know what was wrong with me… Back in Holland I recovered a bit, but a few weeks later I felt really bad again. I was soooooo tired. My mother thought I had Pfeiffer so I went to the doctor, and he took some blood. It seemed I had 'hay fever'. I was allergic to grass. He explained that that was the cause of my tiredness. I got some anti-allergic-pills (forgot the name) and indeed, it went better. Until a month or so later. I felt really tired and nauseous all the time, and after every meal I got sick and had to vomit.
My symptoms are:
-Tiredness. It has been a long time ago since I really felt energetic. After eating I'm really really tired.
-Nausea: this is the worst symptom. When I have my 'attack of GS' (it goes in waves), I feel nauseous when I wake up, when I have had a meal, when I'm hungry (I have read a post where someone wrote that he/she could'n distinct nausea of being hungry. I have the same; sometimes I just don’t know if I feel hungry or nauseous), feel nauseous when I have had exercises, when I made an effort, and even if I laugh to much! I feel like I have to vomit, so I have to keep myself really calm, to get rid of that feeling.
-Vomiting. There are times that I basically FEEL that my stomach is twisting.
-Stomach problems. Includes stomach pain if I don’t eat exactly at dinnertime. If I eat some time later my stomach really hurts. I’m kinda allergic to some foods, like real fatty foods, spicy foods, milk (not always), oranges and soda (drinks with bubbles ;-)…). I don’t drink alcohol at all.
-Lack of appetite. Everything smells awful and I can’t decide what I would like to eat, because it looks all disgusting.
Sometimes I’m hungry, and my stomach feels empty, but it feels like there’s something stuck in my throat. Then I have the feeling I just had a big meal, but my stomach is empty. This is really strange, because I don’t know if I feel hungry or full…… A very bloated feeling.
-Anxiety. Feeling nervous all the time, and don’t know for what. This makes me feel depressed.
I know it’s not all physical, because I had a time I was scared to go to public places because of my fear of having to vomit in public, but it’s not all in my head either.
-Jaundice. The skin under my eyes and mouth is sometimes yellow. The corners of my eyes are usually yellow.
-Foggy head, lack of concentration. Maybe because of the tiredness.
Rachel
Symptoms: jaundice, fatigue, feeling sick, weight lossWhen i had my child i toke jaundice and from then on i have sufferd from energy lose and sickness. At one stage i droped to 7stone and had to give blood samples.When the results came back i was asked if iwas an achoilic because my white blood cells where raised. Then after more test they found i had gilberts syndrome.
Ramakentesh
Male, age 26
Bilirubin readings: 24, 26, 35, 42
Symptoms: dizziness, spaced out, cold hands and feet, heart palpitations, breathlessness, body aches, tremors, feeling cold, jaundice, pale skin, vitreous floaters, aching glands, weight loss, anxiety, caffeine intolerance, fatigue, visual focusing disturbances, swollen lymph nodes, difficulty swallowing, waking panic attacks, mental confusion, high blood pressure, night sweats, excessive thirst, excessive urination, constipation, diarrhea, irritability, kidney pain when urinating, restlessness, hypoglycemic reactions to food, fingernail changes, brain fog, head pressure, itchiness, alcohol intolerance, difficulty concentrating, poor memory, difficulty finding the right words, tingling legsIm exactly the same in terms of the cycle: (my symptoms seem to come in cycles now for the past 4 months… I well start to feel better for a week or two, then i well feel the (GS) type symptoms for a week.)... My doctor was convnced i had an overactive thyroid due to sudden weight loss, tremors, brain fog, cold extremities, dizzyness, balancing problems, yellow eyes and a high bili count - but normal thyroid levels... For years i have had slightly yellowish eyes - especially in the whites below my pupil. I never worried about it because my doctor told me that there was no liver disfunction when i was 16.
From about 2000 onwards i suffered occasional dizziness, caffiene and alcohol interolance, and visual focusing problems. I assume these were caffiene use related and ignored them, as i was generally quie fit and well. On the 22nd of October last year I went to bed feeling unusually tired. Before doing so I had a shower and while there noticed that my left nipple was slightly swollen and sensitive to warm water. I didnt think much of it and went to sleep. I had pushing myself hard to get fit in the three weeks before this night. That evening at 2amish i awoke with a fluttering/pounding heart beat and breathlessness. It was as if my chest was being smothered and i couldnt get enough air. My body was trembling furiously. I went to the bathroom and realised that i was suffering visual disorientation - everything looked strange and double. I felt like i was trembling inside like a fever, but without the increase temperature and i was very pale - almost yellow. I went to emergency and had my heart and thyroid function tested and it all was apparently normal. They could find no reason for my condition and sent me home telling me that i was suffering 'anxiety.' Since then i have been to doctors, endocrinologists, naturopaths and a whole host of others to try and work out what was wrong with me... I got told i had Chronic fatigue/ME when my doctors and endos were at a loss - I was first diagnosed with a thyroid disorder, then low cortisol, then hypoglycemia, but the only test that consistantly came back weird was my bili levels which were 22 to 42 (reference normal below 15). I get dizziness/spaced out/ positional confusion (like my head is all over the place)... One of my main symptoms was caffiene intolerance - it makes me feel duzzy and spaced out so i had to stop completely... my doctors have no idea what is causing this - originally it was suspected that my thyroid was overactive - as i have a family history of this - but all the doctors ive seen say that my results are just high normal and not 'high enough' for my symptoms. Other doctors have suggested electrolyte imbalances, chronic fatigue, strange viral infections, or just my mind (the old i cant explain it therefore you must be going mad)... ive had these (referring to heavy feeling, trouble breathing in) on occasion and sudden heart palps- i had an attack while visiting my doctor and he confirmed that i showed no signs of anxiety or stress during the sudden onset of these symptoms
-periods at night of breathlessness and sudden heart beat
-considerable weight loss- from 78kg to 66kg
-mental confusion - feeling off-balance and dizziness
-occassional fatigue - as if my head it too heavy to hold up with my neck aloneRammy77
Symptoms: fatigue, stomach cramps, bloating
ranayM
Sym